Saturday, January 24, 2009

Myles--3 days old


I have been reading my journal that I started the day I was diagnosed with preeclampsia. It's quite difficult to read the daily updates about Myles, but I want to remember each and every detail of his 26 days of life. Over the next 22 days I plan to do daily blog posts that chronicle Myles's life.

A year ago today Myles was only 4 days old and one of the neonatologists sat us down and told us that we should expect the worst. He told us to call and make arrangements with a local funeral home. The NICU doc said that his 20+ years of experience and a gut feeling told him that Myles wouldn't make it. Of course we were absolutely devastated, but we refused to give up on Myles. We spent the whole day with Myles telling him how much we loved him, how proud of him we were, we encouraged him to keep up the fight, but also told him that we understood if it was too much to continue. We held his little hands and feet and admired him all day.


Many of our friends and family came to meet Myles on his 4th day of age. My bff's, L & J, my parents, J's mom, and my brother, had all met Myles on his birthday, but a few others came to meet him for the very 1st time. Everyone who met Myles thought he was absolutely perfect and they all cheered him on! Auntie D and Uncle J brought Myles a little stuffed lion named Growwl. It was so cute and so fitting. A lion is a symbol of courage, so we put it in Myles's isollette to watch over him, to give him some company, and to help him continue to find the courage to keep up his heroic fight!

15 comments:

Lisa said...

Myles is beautiful Niki - what a beautiful post and a beautiful way to remember him. I cannot wait for each update.

Kris said...

Niki- Myles is such an inspiration to all that hear his story. Thank you for such a beautiful post! I am excited to read each day about his life and the example that he has shown the world.

Kris
PS. I think his Mommy is an inspiration too! :)

Busted said...

I'm sure its hard to go back to those days, but I also think it will help you get through the anniversaries. Myles is so indescribably beautiful. Thank you for sharing him with us.

Bonny said...

I will read each update. I can not imagine how ou are feeling right now. Big hugs from Indiana.

Duck said...

WHat a great post. Thanks for sharing the pictures and stories with us.

Lisa said...

I came across your blog and I was just in awe. Myles is a beautiful boy and it is very touching to read about him. Having suffered the deaths of my premature son Joshua, and then my premature twins, Sarah and Jacob, I find myself relating to every emotion you describe. You say it well.

Also, my cousin carried for us as a gestational surrogate and it was the best experience! It took a couple tries, but today we have gorgeous 2 1/2 year old twin boys. She was the answer to our prayers and I hope and pray that your outcome is just as happy!
thinking of you during Myles' Birthday and your next hopeful venture -
fellow intended Mom, Lisa

Mrs. Spit said...

I feel so priveledged to be able to walk through this time with you.

He's such a beautiful baby. I can hear my nanny calling him a wee bonny bairn.

Tash said...

remembering Myles with you.

I did a similar thing last year commemorating Maddy's 1st year where I wrote a post honoring/explaining each day of her life. It was therapeutic, but it was exhausting. In the end, it was well worth it.

Wishing you peace on this journey.

Lost in Space said...

What a beautiful way to remember Myles. I feel honored that you are willing to share your thoughts and feelings of those precious days you had with your sweet son. Many hugs.

Mommy (You can call me OM) said...

Hello,

I'm stopping over from Lost and Found. Thank you for sharing Myles with us. He is loved.

Billy said...

A lovely way to remember Myles. Thank you for sharing this with us. (here from L&F)

FattyPants said...

What a wonderful way to remember and celebrate your precious boy. Here from the L&F

Fallopian 'Tudes said...

What a sweet little honey. Thank you for sharing this with us.

Cassandra said...

Here from Lost and Found. What a wonderful way to honor Myles and to share him with everyone.

Love the pictures of Growwl keeping watch.

Dalene said...

What a beautiful little guy.